Welcome to our “Podview” an overview of the latest blog posts.
How Dysautonomia Impacts Daily Life: My Story
After sharing my latest heart and tilt-table updates, I realized something: I keep throwing around words like IST, dysautonomia, tachycardia, autonomic nervous system, and adrenergic response as though everyone has spent the last several months earning an honorary medical degree alongside me. 😅 Most people haven’t, so I thought it might be helpful to explain…
Dear self,
I’m so proud of us. I don’t think I say that enough. I spend so much time thinking about what still hurts, what still needs answers, what my body still can’t do, and what the next appointment, test, medication, or diagnosis might bring that sometimes I forget to turn around and look at the road…
Four Beats Short: When a “Negative” Tilt-Table Test Was Anything but Normal
An IST, Dysautonomia & Hyperadrenergic Health Update If you’ve been following my health journey, you know I’ve spent a ridiculous amount of time trying to explain one very specific thing: When I stand up, my body changes gears. My heart rate climbs. My blood pressure climbs with it. The longer I’m upright, the more likely…
The Porch Light Is Still On: When Loving a Friend Means Stepping Away
There is a quote that has been sitting particularly heavy with me lately: “No one trashes your name better than someone who is afraid you’ll tell people the truth.” Whew. That is a loaded statement. And unfortunately, it’s one I’ve learned the truth of more than once in my life. I’ve never been particularly good…
When a “Negative” Tilt-Table Test Became Anything but Negative
Test Experience Today, I finally had my tilt-table test—and saying it started off rough would be an understatement. Before the test had even begun, the doctor looked at my baseline numbers and announced that I was “so negative for everything.” The nurses actually had to talk him into proceeding with the test that I was…
Veiling in Magic: Ancient Roots, Sacred Thresholds, and Modern Practice
Recently, I began incorporating veiling into my own spiritual practice. Not as a requirement, not as a rule, and certainly not because someone told me I had to. Instead, it became a quiet ritual. A way of stepping from the noise of everyday life into something a little more sacred. For many people, the word…
The Dopamine Menu: Pacing Joy When Your Nervous System Lives on Hard Mode ✨🧋📚
Your nervous system is not a broken vending machine that forgot how to dispense joy. It is more like an old woodland radio tower during a thunderstorm. Some days the signal comes in crystal clear. Other days every sound arrives too loudly, too quickly, or all at once. For those of us living with Dysautonomia,…
ADHD, Autism, Food Noise, and Learning to Hear a Fullness Cue for the First Time
One of the strangest parts of starting Mounjaro for me was realizing that I had spent most of my life without truly understanding what “full” was supposed to feel like. That sounds dramatic until you realize how differently neurodivergent people can experience body awareness. When you live with ADHD and autism, hunger and fullness cues…
The Rosy Maple Moth: subtle but still powerful.
The Rosy Maple Moth looks like something painted by a daydreaming goddess with a sweet tooth. With its bubblegum pink legs, buttery yellow wings, and tiny fuzzy body, it barely feels real when you spot one resting near your porch light or curled beside your doorway at night. 🌙🍓✨
