There is a particular kind of exhaustion that comes from being the person who always says, “I’ve got it.” Not because you actually have it. Not because you want to carry everything alone. But because somewhere along the way, doing it yourself became safer than depending on anyone else. Hyper-independence is often discussed as a…
Tag: wellness
How Dysautonomia Impacts Daily Life: My Story
After sharing my latest heart and tilt-table updates, I realized something: I keep throwing around words like IST, dysautonomia, tachycardia, autonomic nervous system, and adrenergic response as though everyone has spent the last several months earning an honorary medical degree alongside me. 😅 Most people haven’t, so I thought it might be helpful to explain…
Four Beats Short: When a “Negative” Tilt-Table Test Was Anything but Normal
An IST, Dysautonomia & Hyperadrenergic Health Update If you’ve been following my health journey, you know I’ve spent a ridiculous amount of time trying to explain one very specific thing: When I stand up, my body changes gears. My heart rate climbs. My blood pressure climbs with it. The longer I’m upright, the more likely…
The Dopamine Menu: Pacing Joy When Your Nervous System Lives on Hard Mode ✨🧋📚
Your nervous system is not a broken vending machine that forgot how to dispense joy. It is more like an old woodland radio tower during a thunderstorm. Some days the signal comes in crystal clear. Other days every sound arrives too loudly, too quickly, or all at once. For those of us living with Dysautonomia,…
ADHD, Autism, Food Noise, and Learning to Hear a Fullness Cue for the First Time
One of the strangest parts of starting Mounjaro for me was realizing that I had spent most of my life without truly understanding what “full” was supposed to feel like. That sounds dramatic until you realize how differently neurodivergent people can experience body awareness. When you live with ADHD and autism, hunger and fullness cues…
Let’s just get this out of the way:
My body is not a well-oiled machine. It’s more like a haunted Victorian house where all the wiring is questionable, something creaks at 3am for no reason, and every system occasionally just… does its own thing. It’s a bizarre environment where shadows loom unexpectedly and every corner seems to hold secrets of its own. And…
🫀✨ When the Body Speaks in Thunder: A Heart & Nervous System Update ✨🫀
The author shares their journey of living with Inappropriate Sinus Tachycardia (IST) and Dysautonomia. After undergoing tests, they find peace in understanding their condition. Emphasizing treatment over cure, they outline a management plan, while encouraging acceptance and adaptability. The message highlights the importance of listening to one’s body and finding deeper alignment.
Health Update: Learning the Rhythm of a Body That Changes
Living in a body that refuses to behave like everyone else’s means learning to listen differently. This process is not just about physical ailments; it is a form of constant recalibration in how I perceive my own limits and abilities. Over the last few weeks, I’ve had a few more appointments and updates from doctors….
Plateaus, Medications & Prison Breaks: A Slightly Petty Victory Tour
There is a special kind of character development that happens when you are doing everything “right” and the scale responds with the enthusiasm of a brick wall. For three months, I lived in what I now refer to as the 213 holding cell. 211 again. Back to 213, like it paid taxes there. Wegovy helped…
Understanding Your Body: The Importance of Patient Advocacy
I went to med stop because my body has been waving every red flag it knows how to raise: chills, a low-grade fever, nausea, my heart rate climbing higher than it has in a month, and a level of fatigue that sits deep in the bones. I tried to explain all of that, hoping to rule out infection or anything making things worse. The response? “I don’t know what’s going on. What did you want from today?”
