After sharing my latest heart and tilt-table updates, I realized something: I keep throwing around words like IST, dysautonomia, tachycardia, autonomic nervous system, and adrenergic response as though everyone has spent the last several months earning an honorary medical degree alongside me. 😅 Most people haven’t, so I thought it might be helpful to explain…
Tag: chronic illness
Dear self,
I’m so proud of us. I don’t think I say that enough. I spend so much time thinking about what still hurts, what still needs answers, what my body still can’t do, and what the next appointment, test, medication, or diagnosis might bring that sometimes I forget to turn around and look at the road…
Four Beats Short: When a “Negative” Tilt-Table Test Was Anything but Normal
An IST, Dysautonomia & Hyperadrenergic Health Update If you’ve been following my health journey, you know I’ve spent a ridiculous amount of time trying to explain one very specific thing: When I stand up, my body changes gears. My heart rate climbs. My blood pressure climbs with it. The longer I’m upright, the more likely…
Mindful Practices for Managing Chronic Pain
The journey described reflects a gradual acceptance of chronic health challenges, emphasizing the importance of mindful practices like gentle movement, journaling, and meditation. By integrating innovative tools for symptom management and fostering self-compassion, the author seeks to redefine wellness. This path is about adaptation, community support, and personal growth rather than a pursuit of ‘normalcy.’
Switching Things Up Again: A Gamble Trial-and-Error Medicine
If you’re wondering whether I enjoy switching biologics and weight-loss meds like Pokémon cards, the answer is no. No, I do not. But here we are again, standing at the crossroads of “this worked until it absolutely didn’t” and “please let this be the combo that doesn’t ruin my life.” This ongoing cycle feels a…
🌿 The New Federal Hemp Ban: What It Really Means for Consumers, Businesses, and People Like Me
On November 13, 2025, Congress enacted new hemp product restrictions, redefining “hemp” to include a total THC limit of 0.3%, which impacts full-spectrum products. This law threatens small businesses, jobs, and consumer access to therapeutic hemp, urging immediate advocacy and legal action before the enforcement date in late 2026.
When “Do PT” Meets “Absolutely Not” — The Mobility Aid Saga
When “Do PT” Meets “Absolutely Not” — The Mobility Aid Saga You ever have one of those moments where your doctor replies to your message and you just sit there staring at the screen like… did we read the same chart? So picture this: I finally decide it’s time to start looking into mobility aids….
Learning to Let Go of Resistance
Can we talk about how defeating it feels to need a mobility aid before you’re even “officially old”? I about cried today when my husband and son made a simple joke. They didn’t mean any harm, but it hit deeper than I expected. Truth is, I’ve been fighting the idea of using one since 2015…
Neuro Health Update
This week brought significant health concerns, including an unexpected neurosurgeon consult. Fortunately, my neurologist confirmed I am not a candidate for surgery, providing reassurance. He explained my symptoms resulted from various conditions. My focus will now be on weight loss and gentle movement, embracing actionable steps for my health journey.
Health Update: Apparently, My Body Loves Bingo
The author shares a deeply personal account of their ongoing health struggles, including thoracic scoliosis, herniated discs, and an old tumor. They express frustration with the medical process and the lack of clear treatment plans, emphasizing the emotional toll of uncertainty. Despite the challenges, they remain resilient, advocating for their health and seeking deeper answers.
