How Dysautonomia Impacts Daily Life: My Story

After sharing my latest heart and tilt-table updates, I realized something: I keep throwing around words like IST, dysautonomia, tachycardia, autonomic nervous system, and adrenergic response as though everyone has spent the last several months earning an honorary medical degree alongside me. 😅 Most people haven’t, so I thought it might be helpful to explain…

The Porch Light Is Still On: When Loving a Friend Means Stepping Away

There is a quote that has been sitting particularly heavy with me lately: “No one trashes your name better than someone who is afraid you’ll tell people the truth.” Whew. That is a loaded statement. And unfortunately, it’s one I’ve learned the truth of more than once in my life. I’ve never been particularly good…

When a “Negative” Tilt-Table Test Became Anything but Negative

Test Experience Today, I finally had my tilt-table test—and saying it started off rough would be an understatement. Before the test had even begun, the doctor looked at my baseline numbers and announced that I was “so negative for everything.” The nurses actually had to talk him into proceeding with the test that I was…

Coping with Food Aversions on GLP-1 Medication

Navigating eating with ADHD, autism, and GLP-1 medications like Mounjaro can be challenging. Sensory issues often make certain foods unbearable, while appetite suppression complicates meal choices. Embracing flexible eating habits, focusing on nourishment rather than perfection, and being gentle with oneself are essential for neurodivergent individuals managing food intake and health.

Let’s just get this out of the way:

My body is not a well-oiled machine. It’s more like a haunted Victorian house where all the wiring is questionable, something creaks at 3am for no reason, and every system occasionally just… does its own thing. It’s a bizarre environment where shadows loom unexpectedly and every corner seems to hold secrets of its own. And…