If you’ve ever winced in pain just from the feeling of a soft blanket brushing your skin, you’re not alone — and you’re not imagining things. This is a very real and often misunderstood symptom of Fibromyalgia called Allodynia. Allodynia can make everyday sensations, such as a light touch or the pressure from clothing, feel agonizingly painful, leading…
Tag: chronic illness
When the Doctor Stops Listening: A Battle Cry for the Dismissed
There’s a specific kind of heartbreak that comes when a doctor looks at you—not with compassion, not with curiosity, not with hope—but with defeat. That moment when you realize they’ve silently decided you’re too much, too complicated, or worse, not worth figuring out. It’s the second you start talking about symptoms they can’t see on a chart….
How the pages have turned: Rheumy Update: Gaslighting Special!
Another Day, Another Doctor…(And this time, it’s a two-part rollercoaster.) We had high hopes for this new rheumatologist. Really, we did. I made the switch not because my previous rheumy wasn’t doing her job—she’s amazing—but because I was trying to make life just a bit easier by finding someone local. Closer drive, easier appointments, same quality of care……
Understanding Fibromyalgia: More Than Just Pain
When Your Muscles Twitch and Your Body Won’t Listen: The Hidden Layers of Fibromyalgia I used to think fibromyalgia was “just” chronic widespread pain and fatigue. I hate that I even put the word just in there — because even that would be a lot to carry. But as I’ve learned firsthand, this diagnosis brings with it…
Supporting Loved Ones with Chronic Illness: A Guide
How to Support a Loved One with Chronic Illness (Without Losing Your Mind or Theirs)Because casseroles are nice, but compassion is better Hey there, soul tribe! Let’s talk about something near and dear to many of our spoons — chronic illness and chronic pain. Whether your bestie has fibro, your partner is navigating an autoimmune rollercoaster, or…
New Rheumatologist & Diagnosis: What I Learned
Health Update: Rheumy Edition So, we met the new Rheumatologist and… drumroll please… we actually really liked him! He was thorough, kind, and didn’t look at me like I had three heads when I rattled off my list of issues. In fact, he took the time to listen carefully to each concern, nodding along and…
Trial and Error: 5 Years of Medication for Chronic Illness
5 Years of Medication Mayhem — A Chronic Illness UpdateCan you believe it’s been five years of med-hopping, body-battling, and playing pharmaceutical roulette? And three years since Cimzia kicked off its short-lived reign of terror. Time flies when your immune system refuses to chill. 🌀 Cimzia actually started out strong — my skin was like, “Okay, I see you!”…
My Health Journey: A Decade of Resilience
Health Update: The Journey Continues (Longish read, but from the heart ) Hey, beautiful souls. It’s been a while, and I wanted to take a moment to update you all. Life has been catching up with me—between my health and the everyday chaos, I haven’t been as active here as I’d like. For that, I…
Autoimmune/Chronic Illness Visibility: P2
This is the second part of the series.
Ever wonder what an autoimmune disorder or chronic pain feels like to those who suffer from it? Sometimes words do no represent it strong enough, this is why I decided to create a series of art work with the help of AI to generate what it appears to be on the inside, though we may appear normal on the outside.
This time I asked the AI to help with disorders, each of was a disease or disorder put into a photo with just its name alone. Do you think you can guess each one?
What does Chronic Pain and Autoimmune look like on the inside? Visual Art Pieces- Part 1
Ever wonder what an autoimmune disorder or chronic pain feels like to those who suffer from it? Sometimes words do no represent it strong enough, this is why I decided to create a series of art work with the help of AI to generate what it appears to be on the inside, though we may appear normal on the outside.
