Finally… A Good Set of Labs!

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Today, I cried—but not from pain, fear, or frustration. I cried tears of joy.

After years of struggle, uncertainty, and appointments that left me feeling more unseen than helped (IYKYK), I finally got a good set of labs back. And let me tell you—it feels like a freaking miracle. It’s amazing how the body and mind can endure so much, yet still manage to find rays of hope in the darkness.

Each doctor visit seemed to compound my worries, as I was constantly searching for answers that felt just out of reach. I remember the countless sleepless nights spent tossing and turning, my mind racing with worst-case scenarios that crept in like shadows. The fatigue of not knowing weighed heavy on me, and it often felt like I was in a tunnel with no light at the end.

But today, all of that shifted. When the email came in with my lab results, I felt as if a boulder had been lifted off my chest. The numbers that came through were not just data; they were a testament to my resilience and strength. I was overcome with gratitude, tears streaming down my face, as I realized that this victory was more than just medical—it symbolized a turning point in my journey.

In that moment of joy, I felt connected to everyone who has ever been on a similar path, who has battled through illness or uncertainty. We share a bond of resilience that is both powerful and uplifting. This experience has taught me the importance of celebrating even the smallest victories and recognizing the profound impact they can have on our lives.

So today, as I wipe away those tears of joy, I hold tightly to the hope that lies ahead. Each step forward feels like a step into the light, reminding me of the beauty that can arise from even the most challenging times.

For the first time ever, I am genuinely excited for my next biologic shot. Yes, I said excited. Why? Because it’s working. Tremfya is actually helping, and that’s not something I’ve been able to say before without hesitation. It’s incredible how a simple medication—something I once approached with skepticism—has proven to be such a hopeful beacon in my journey.

There’s still some evidence of inflammation, sure. This isn’t a magical overnight cure—but it is progress. Real, measurable progress that fills me with a sense of optimism I haven’t experienced in a long while. Compared to my labs from April 14th (aka that nightmare appointment with “He Who Shall Not Be Named”), I’m down three points in one key inflammatory marker. This specific number may seem small to some, but to me, it represents countless hours of effort, emotional energy, and the battle I’ve faced against my body. I did go up slightly in another area, but nothing alarming—just something to monitor. And that’s okay. Healing never happens all at one time, and understanding that gives me peace. Each step, regardless of the direction, is a part of my journey. Baby steps still count, especially in a chronic health journey.

I’ve learned to adapt my expectations, embracing the notion that forward is forward. Each lab result, each appointment, even each setback, teaches me more about resilience and patience. I am starting to feel like I can reclaim parts of my life that I’d long set aside. The excitement for my next treatment is not just about the medication; it’s about the belief that I am moving closer to becoming the version of myself I know is possible. There’s a renewed sense of hope that springs from these results, and I am ready to embrace it with open arms.

Hope is a funny thing. It’s been hard to hold onto at times when every flare, every sleepless night, and every failed med made it feel out of reach. But today… today hope is loud. It’s in my tears. It’s in my smile. It’s in my heartbeat.

And let’s not forget about Zepbound—another unexpected hero in my journey. Not only is it helping with weight and energy, but it’s also been reducing inflammation. This improvement, which I consider an amazing perk I didn’t anticipate, has been a pleasant surprise that I am grateful for. It feels empowering to experience benefits that contribute positively to my overall well-being and quality of life.

So here I am, a woman living with multiple autoimmune and inflammatory conditions, finally feeling heard, seen, validated—and most importantly, better. It hasn’t been an easy road, but the progress I’ve made is a testament to my resilience and determination. I’ve come to recognize that self-care, the right treatments, and a supportive community are invaluable in navigating these challenges.

To anyone out there still in the thick of it: don’t give up. There will be days when it feels like the struggle is too much, but those are the moments when you must dig deep. Keep pushing for answers. Keep advocating for yourself. Remember that your voice matters and that you have the right to demand providers who treat you like a person, not a chart. Seek out those who understand your journey and can create personalized plans that truly resonate with your needs.

Better days can come. This is me, holding the proof, standing as an example of what perseverance can lead to. Let’s continue to share our stories, uplift one another, and inspire hope in the face of adversity. Together, we can illuminate the path for those still searching for their way through the darkness.

Much love and many blessings,
Mrs. B


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