My body is not a well-oiled machine. It’s more like a haunted Victorian house where all the wiring is questionable, something creaks at 3am for no reason, and every system occasionally just… does its own thing. It’s a bizarre environment where shadows loom unexpectedly and every corner seems to hold secrets of its own. And…
Category: Autoimmune Journey
🫀✨ When the Body Speaks in Thunder: A Heart & Nervous System Update ✨🫀
The author shares their journey of living with Inappropriate Sinus Tachycardia (IST) and Dysautonomia. After undergoing tests, they find peace in understanding their condition. Emphasizing treatment over cure, they outline a management plan, while encouraging acceptance and adaptability. The message highlights the importance of listening to one’s body and finding deeper alignment.
Health Update: Learning the Rhythm of a Body That Changes
Living in a body that refuses to behave like everyone else’s means learning to listen differently. This process is not just about physical ailments; it is a form of constant recalibration in how I perceive my own limits and abilities. Over the last few weeks, I’ve had a few more appointments and updates from doctors….
Plateaus, Medications & Prison Breaks: A Slightly Petty Victory Tour
There is a special kind of character development that happens when you are doing everything “right” and the scale responds with the enthusiasm of a brick wall. For three months, I lived in what I now refer to as the 213 holding cell. 211 again. Back to 213, like it paid taxes there. Wegovy helped…
Understanding Your Body: The Importance of Patient Advocacy
I went to med stop because my body has been waving every red flag it knows how to raise: chills, a low-grade fever, nausea, my heart rate climbing higher than it has in a month, and a level of fatigue that sits deep in the bones. I tried to explain all of that, hoping to rule out infection or anything making things worse. The response? “I don’t know what’s going on. What did you want from today?”
Mindful Practices for Managing Chronic Pain
The journey described reflects a gradual acceptance of chronic health challenges, emphasizing the importance of mindful practices like gentle movement, journaling, and meditation. By integrating innovative tools for symptom management and fostering self-compassion, the author seeks to redefine wellness. This path is about adaptation, community support, and personal growth rather than a pursuit of ‘normalcy.’
Switching Things Up Again: A Gamble Trial-and-Error Medicine
If you’re wondering whether I enjoy switching biologics and weight-loss meds like Pokémon cards, the answer is no. No, I do not. But here we are again, standing at the crossroads of “this worked until it absolutely didn’t” and “please let this be the combo that doesn’t ruin my life.” This ongoing cycle feels a…
When Grief Packs Its Own Suitcase
Traveling amidst grief can create a unique exhaustion that blends emotional weight with logistical challenges. The author reflects on their experience accompanying their husband during family loss, navigating both physical illness and emotional turmoil. They emphasize the necessity of self-compassion, acknowledging that grief affects the body and mind, necessitating rest and support.
🌿 The New Federal Hemp Ban: What It Really Means for Consumers, Businesses, and People Like Me
On November 13, 2025, Congress enacted new hemp product restrictions, redefining “hemp” to include a total THC limit of 0.3%, which impacts full-spectrum products. This law threatens small businesses, jobs, and consumer access to therapeutic hemp, urging immediate advocacy and legal action before the enforcement date in late 2026.
When “Do PT” Meets “Absolutely Not” — The Mobility Aid Saga
When “Do PT” Meets “Absolutely Not” — The Mobility Aid Saga You ever have one of those moments where your doctor replies to your message and you just sit there staring at the screen like… did we read the same chart? So picture this: I finally decide it’s time to start looking into mobility aids….
