After sharing my latest heart and tilt-table updates, I realized something: I keep throwing around words like IST, dysautonomia, tachycardia, autonomic nervous system, and adrenergic response as though everyone has spent the last several months earning an honorary medical degree alongside me. 😅 Most people haven’t, so I thought it might be helpful to explain…
Category: Autoimmune Journey
Dear self,
I’m so proud of us. I don’t think I say that enough. I spend so much time thinking about what still hurts, what still needs answers, what my body still can’t do, and what the next appointment, test, medication, or diagnosis might bring that sometimes I forget to turn around and look at the road…
Four Beats Short: When a “Negative” Tilt-Table Test Was Anything but Normal
An IST, Dysautonomia & Hyperadrenergic Health Update If you’ve been following my health journey, you know I’ve spent a ridiculous amount of time trying to explain one very specific thing: When I stand up, my body changes gears. My heart rate climbs. My blood pressure climbs with it. The longer I’m upright, the more likely…
When a “Negative” Tilt-Table Test Became Anything but Negative
Test Experience Today, I finally had my tilt-table test—and saying it started off rough would be an understatement. Before the test had even begun, the doctor looked at my baseline numbers and announced that I was “so negative for everything.” The nurses actually had to talk him into proceeding with the test that I was…
The Dopamine Menu: Pacing Joy When Your Nervous System Lives on Hard Mode ✨🧋📚
Your nervous system is not a broken vending machine that forgot how to dispense joy. It is more like an old woodland radio tower during a thunderstorm. Some days the signal comes in crystal clear. Other days every sound arrives too loudly, too quickly, or all at once. For those of us living with Dysautonomia,…
Coping with Food Aversions on GLP-1 Medication
Navigating eating with ADHD, autism, and GLP-1 medications like Mounjaro can be challenging. Sensory issues often make certain foods unbearable, while appetite suppression complicates meal choices. Embracing flexible eating habits, focusing on nourishment rather than perfection, and being gentle with oneself are essential for neurodivergent individuals managing food intake and health.
Let’s just get this out of the way:
My body is not a well-oiled machine. It’s more like a haunted Victorian house where all the wiring is questionable, something creaks at 3am for no reason, and every system occasionally just… does its own thing. It’s a bizarre environment where shadows loom unexpectedly and every corner seems to hold secrets of its own. And…
🫀✨ When the Body Speaks in Thunder: A Heart & Nervous System Update ✨🫀
The author shares their journey of living with Inappropriate Sinus Tachycardia (IST) and Dysautonomia. After undergoing tests, they find peace in understanding their condition. Emphasizing treatment over cure, they outline a management plan, while encouraging acceptance and adaptability. The message highlights the importance of listening to one’s body and finding deeper alignment.
Health Update: Learning the Rhythm of a Body That Changes
Living in a body that refuses to behave like everyone else’s means learning to listen differently. This process is not just about physical ailments; it is a form of constant recalibration in how I perceive my own limits and abilities. Over the last few weeks, I’ve had a few more appointments and updates from doctors….
Plateaus, Medications & Prison Breaks: A Slightly Petty Victory Tour
There is a special kind of character development that happens when you are doing everything “right” and the scale responds with the enthusiasm of a brick wall. For three months, I lived in what I now refer to as the 213 holding cell. 211 again. Back to 213, like it paid taxes there. Wegovy helped…
