This past week has been a bit of a rollercoaster, filled with unexpected twists and turns that left me reeling. Just when I thought I was starting to understand my condition better, I received an unexpected call informing me that I needed a neurosurgeon consult. Honestly, it completely floored me. I hadn’t yet received any information about my MRI results, and getting that call without any context only heightened my anxiety and confusion. For days, I was left grappling with the weight of uncertainty, worrying about what it could mean for my health and whether the prospect of surgery was suddenly looming on the horizon.

After an agonizing wait, today marked a significant turning point as I finally had the opportunity to see my neurologist. The moment I walked into the room, I felt a rush of apprehension, only to be met with immediate reassurance from him. I learned that I am not a good candidate for surgery, which was a relief that washed over me like a wave. He informed me that while the option to proceed with the consult was available if it was something I truly wanted, he would strongly advise against it. Hearing that was like having a heavy knot in my chest finally let go, allowing me to breathe a bit easier.

During our discussion, we delved into my results in detail—even though he was not the one who had initially ordered the MRI. He carefully explained that the combination of my scoliosis, spinal hemangiomas, and carpal tunnel syndrome are all contributing factors to the numbness and tingling sensations I’ve been experiencing in my hands. This concerning array of symptoms was exacerbated by my underlying conditions of Psoriatic Arthritis (PsA) and Fibromyalgia. He empowered me by advising the use of my wrist braces and thoracic brace as needed, which I had been somewhat apprehensive about utilizing consistently.

When it came to my back, he outlined how the bulging disc was part of the broader picture but highlighted an even more pressing issue: one of the ligaments in my spine has thickened and is pushing against my nerves. This revelation was sobering, yet it was also helpful to have a clearer understanding of what I’m facing. The plan, as it stands, is to continue focusing on weight loss and engaging in gentle movement. He mentioned that if my progress stalls and weight loss alone stops being effective, we could consider a steroid injection down the road as a potential aid in reducing more pain.

In our conversation, he was refreshingly honest about the potential trajectory of my condition. He told me that if things continue to progress in the same manner, I may need to rely on my canes more frequently and might even consider introducing additional mobility aids in the future. While that’s certainly not easy to hear, I genuinely appreciate his straightforwardness; it’s better to be prepared for what may come rather than being blindsided.

At this moment, I’m choosing to hold on to the relief that surgery isn’t on the table for me at this time. I’m focusing my energy on the actionable steps I can take to keep moving forward, both physically and mentally. The support from my neurologist has been invaluable, and I’m motivated to embrace the recommendations he provided as I navigate through this chapter of my health journey.