After sharing my latest heart and tilt-table updates, I realized something: I keep throwing around words like IST, dysautonomia, tachycardia, autonomic nervous system, and adrenergic response as though everyone has spent the last several months earning an honorary medical degree alongside me. đ Most people haven’t, so I thought it might be helpful to explain…
Tag: Health journal
Four Beats Short: When a âNegativeâ Tilt-Table Test Was Anything but Normal
An IST, Dysautonomia & Hyperadrenergic Health Update If youâve been following my health journey, you know Iâve spent a ridiculous amount of time trying to explain one very specific thing: When I stand up, my body changes gears. My heart rate climbs. My blood pressure climbs with it. The longer Iâm upright, the more likely…
When a âNegativeâ Tilt-Table Test Became Anything but Negative
Test Experience Today, I finally had my tilt-table testâand saying it started off rough would be an understatement. Before the test had even begun, the doctor looked at my baseline numbers and announced that I was âso negative for everything.â The nurses actually had to talk him into proceeding with the test that I was…
The Dopamine Menu: Pacing Joy When Your Nervous System Lives on Hard Mode â¨đ§đ
Your nervous system is not a broken vending machine that forgot how to dispense joy. It is more like an old woodland radio tower during a thunderstorm. Some days the signal comes in crystal clear. Other days every sound arrives too loudly, too quickly, or all at once. For those of us living with Dysautonomia,…
ADHD, Autism, Food Noise, and Learning to Hear a Fullness Cue for the First Time
One of the strangest parts of starting Mounjaro for me was realizing that I had spent most of my life without truly understanding what âfullâ was supposed to feel like. That sounds dramatic until you realize how differently neurodivergent people can experience body awareness. When you live with ADHD and autism, hunger and fullness cues…
When âDo PTâ Meets âAbsolutely Notâ â The Mobility Aid Saga
When âDo PTâ Meets âAbsolutely Notâ â The Mobility Aid Saga You ever have one of those moments where your doctor replies to your message and you just sit there staring at the screen like⌠did we read the same chart? So picture this: I finally decide itâs time to start looking into mobility aids….
Learning to Let Go of Resistance
Can we talk about how defeating it feels to need a mobility aid before youâre even âofficially oldâ? I about cried today when my husband and son made a simple joke. They didnât mean any harm, but it hit deeper than I expected. Truth is, Iâve been fighting the idea of using one since 2015…
Neuro Health Update
This week brought significant health concerns, including an unexpected neurosurgeon consult. Fortunately, my neurologist confirmed I am not a candidate for surgery, providing reassurance. He explained my symptoms resulted from various conditions. My focus will now be on weight loss and gentle movement, embracing actionable steps for my health journey.
Health Update: Apparently, My Body Loves Bingo
The author shares a deeply personal account of their ongoing health struggles, including thoracic scoliosis, herniated discs, and an old tumor. They express frustration with the medical process and the lack of clear treatment plans, emphasizing the emotional toll of uncertainty. Despite the challenges, they remain resilient, advocating for their health and seeking deeper answers.
đż Celebrating the Small Victories
Life’s challenges can feel overwhelming, but progress often emerges from small victories. Celebrating these seemingly minor achievements fosters resilience and builds momentum, laying the groundwork for significant milestones. By acknowledging personal wins and reflecting on them, we cultivate positivity and inspiration in our journeys, reinforcing that every step forward matters.
